Showing posts with label cerebral palsy. Show all posts
Showing posts with label cerebral palsy. Show all posts

Sunday, July 21, 2019

The Philosophy of "Disability"


Simply because one belongs to a particular culture does not mean they ascribe to its values in totality. I myself have cerebral palsy and personal detest the word “disabled” (do not even get me started on the “R” word). Essentially, I can do anything you can do; it may take me longer, I might have to make adjustment or need supports but I have the ability, albeit in a different form.  As such, I much prefer being referred to as “differently-abled”. Of course, that is my preference. However, to most individuals with disabilities this verbiage is not a concern. By the way, I also do not approach people at work and say, “Would you mind not saying ‘disability’ in front of me?”
            I met with client of mine who is deaf a couple of weeks ago. Through an ASL interpreter, I kept using the phrase “hearing-impaired” because I thought that was the preferred term. The interpreter gently told me that the majority of the deaf community prefers to be called just that, deaf. The interpreter further informed me, when you attach the word “impairment” to anything it is seen as a negative and by and large creates a hurtful stigma. I asked the client, “Which do you prefer?” To which he replied, “Don’t care. How about cool guy that can’t hear?”
            Funny, but also telling that no one wants to be saddled by any label, particularly if they do not feel it defines them.  People are far more than one thing. 

Not all disabilities look like this


           

Monday, February 27, 2017

Quality of Life


Introduction
I am currently enrolled in an ethics class. Within this class, which is online, we get to have "discussions" with classmates about topics presented from the textbook, or other related items of note.

What is shown below is my response to another student (who is a mother) that was advocating the aborting of a child if a disability had been diagnosed during pregnancy. Her point of view centered around how the "disabled" baby might not have an appropriate quality of life, and if the disability was too severe, the right decision would be to abort.

Gee I wonder which side of the argument I might be on, let's see...


Good day Moron,
            If I may let me add some perspective to your words around the abortion of a fetus marked with a “disability”.
            To begin, I agree with you the term “disability” can have a spectrum of meaning. Personally, I hate to harp on words, but I will say I despise the term. I like “differently abled” (and I realize how ridiculously liberal and PC that may sound, but hear me out). As someone with cerebral palsy on my right side I have personal experience with what it means to have a “disability”. In reality, because my CP predominately affects my right hand, I can do most anything any person can do, I just may have to perform the task differently or it may take longer. This does not impact my quality of life. In much the same way this applies to many people with “disabilities”, those individuals simply need to approach a task or problem in an alternative way in order to accomplish things. For instance, I would have you Google “Jim Abbott” – he was a Major League Baseball player born without a right arm. Merely watch a video of him pitching a no hitter game and you will see what I mean more clearly.
            Which leads me to my next point: Much the same as the term “disability”, so too can the phrase “quality of life” take on a variety of meanings. Even those with what onlookers might call “severe disabilities” can in fact be happy, content and enjoy life. Case in point; my work in a group home for the Division of Developmental Disabilities showed me that a fourteen year old boy who was blind, had cerebral palsy, was autistic and even confined to a wheelchair can enjoy life. How do I know this? Because I saw the way his face would light up when he heard music. By the way; B.B. King was one of his favorites.

            Doctors are fallible; likewise mothers and fathers are just as prone to off judgment, misinformation and mistakes. Who is to say what one’s threshold for quality of life should be in order that they may be allowed to exist? 

Photo credit: disabilitynow.org.uk